Poem -

Remember When

Lupus

Remember When

Remember when I always smiled
And laughed so hard that I cried
But, now when you see it
Well, I am sorry I lied

Remember when I never complained
About nothing to name
That’s all you hear now
It's a damn pity and shame

Remember when you could call me for help
No matter the time of day
You’d tell me the problem
And I’d be on my way

Remember when I once
Could run circles around you
Or do you sit there now 
And say, “Crystal who?”

I remember when
I never hurt at all
I remember enjoying the sun
Winter, Spring, Summer, and Fall

I remember when 
I never felt a bit depressed
I never knew anxiety
This new life I detest

I remember when 
I could remember everything
Now brain fog takes over
I now remember nothing

I remember when
I worked as a nurse
Now I can’t even remember
To grab my damn purse

I remember when
My children had it all
Now when they ask
I feel so small

I remember when
Money wasn’t a worry
Played the cards I was dealt
What a fuck to life’s journey

I remember when
I heard the comments some made
But when my lungs shut down
You were suddenly afraid

I remember when
You didn’t believe I was sick
I heard all the rumors
You spread around real quick

I remember when
I woke from the vent
You sat there across from me
Sorry one hundred percent

Do you remember when
You spread all those lies
I remember now
So look into my eyes

I told you then
I’ll tell you now
Get out of my room
You freaking coward

You hurt me with words
You talked behind my back
And now today in this room
It’s I who will attack

Lupus isn’t seen by all
It hides within a sick shell
You should have supported me
Now get out and go to hell

I don’t need people like you
In my life no more
Just leave right now
And forget I was ever born.
 

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Comments

author
Janice Cook

I have this same Disease an people just can't see nor understand it at all I cried when I read this I feel your pain đź’Ż I am truly sorry đź’– shared with you it's so beautiful and sadly true they gave me only couple years before I go. No insurance no doctors for 5 years now and I am not sure I have good days and I have bads and most of the time I can't even get out of bed

Reply
author
Crystal Smith

Oh, hun.  I am so sorry.  I wouldn't wish Lupus upon anyone.  I can't imagine not having insurance and getting treatment.  I was there in the beginning but only for a few weeks.  I have mostly bad days, but I look forward to having good days.  Thank you for sharing your story.  There are days when I don't get out of bed either.  No one understands what it feels like because it's not something that they can see.  But thankfully, my husband and kids have been my rocks through all of this and keep me going every day.  I hope you keep up the fight and prove the doctors wrong.  I will keep you in my prayers.  

Reply
author
The fish of the sea

Seems like a very personal write here Crystal, you have so much courage to post. Fully, Cosmos will be here to support you. What a passionate display of poetry. Enjoyed the emotion~

Reply
author
Crystal Smith

Thank you for your support.  It means more than I can express with words.  Lupus is a disease that is invisible to most until the blood work is shown, or until a person is placed on a vent because lupus has decided to attack her lungs.  It is then when the people around you notice that hey, something is really wrong with her.  It is a shame that is how it works.  Again, thank you from the bottom of my heart.
 

Reply
author
Janice Cook

Thank you I am so tired of fighting the discomfort and pain has got me breaking and having nothing to help with nothing the worst part of all this is that I am homeless and sleep in a tent in a friend's back yard all year round and every winter I have to pay every closes attention to my hands or ii will end up losing them sense I don't have any sensory in them nomore. But it's not my time just yet no matter wat I don't have a expiration date on my foot

Reply
author
Crystal Smith

I am so sorry.  I can't imagine being homeless and then on top of that fighting to keep my body parts, staying warm, and so on.  You are so strong and I appreciate you sharing your story with me.  Thank you and just know, I am always here if you need to chat.  

Reply
author
Marion

Great awareness write of the agonies of this particular disease...hugs x

Reply
author
Crystal Smith

Thank you.  I appreciate your comment and hugs.  

Reply
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